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Latest News about Real/World Data
Recent news which mentions Real/World Data
Timothy Syndrome Alliance & Pulse Infoframe collaborate on registry for rare CACNA1C-related disorders
March 24, 2022
Tickers
RWD
RWE
Tags
Healthcare
drug development
patient advocacy
From
PRUnderground
The Myrovlytis Trust Leverages Pulse Infoframe’s Platform to Study Birt-Hogg-Dubé Syndrome
February 17, 2022
Tickers
PRO
RWD
RWE
Tags
RWE
RWD
rare disease
From
PRUnderground
Alport Syndrome Foundation Joins Pulse Infoframe’s healthie™ Kidney Disease Patient Registry
September 14, 2021
Tickers
RWD
RWE
Tags
patient advocacy
drug development
Healthcare
From
PRUnderground
PIP-UK to Celebrate Poland Syndrome Community Register Project at Annual Family Conference
August 12, 2021
Tickers
RWD
RWE
Tags
Patient Registries
rare disease patient registries
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