Latest News about rare disease
Recent news which mentions rare disease
From Benzinga
Exploring Pathways in Immune-Mediated Diseases To Advance Patient Care
September 14, 2022
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BMY
The United States Thrombotic Microangiopathy Alliance and Consortium Announces Website Launch
August 03, 2022
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TTP
From PRUnderground
Timothy Syndrome Alliance & Pulse Infoframe collaborate on registry for rare CACNA1C-related disorders
March 24, 2022
From PRUnderground
Two Different Rare Diseases Before Age 20: Chansen Savakinus’ Rare Disease Day Message
February 25, 2022
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FCF
From PRUnderground
The Myrovlytis Trust Leverages Pulse Infoframe’s Platform to Study Birt-Hogg-Dubé Syndrome
February 17, 2022
From PRUnderground
Making Noise to Find Cures. Fibrolamellar Cancer Foundation Raises Awareness for #RareCancerDay 9/30/21
September 28, 2021
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FCF
From PRUnderground
SMASHFEST Fundraiser Skates Into Stamford
August 08, 2021
From PRUnderground
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